Preventative Legislation in New York for DNA Test?

[Zaru]

I remember seeing something in the news recently that would effectively ban me from purchasing a kit from 23andMe. I cannot find any further info and am trying to verify this, does anyone know more about this?

Cheers,

Zaru

[spruithean]

I remember seeing something in the news recently that would effectively ban me from purchasing a kit from 23andMe. I cannot find any further info and am trying to verify this, does anyone know more about this?

Cheers,

Zaru

I think banning DNA testing would be foolish. Many people would not like that......

My response is probably not very helpful at all

[Darren]

Here is an article from last year discussing the issue:

http://www.nytimes.com/2008/06/26/business/26gene.html?_r=1

There was a big deal about it last year but I have not heard much since.

-Darren Marin
Family Tree DNA

[Deirwha]

Cycles

Here is an article from last year discussing the issue:

http://www.nytimes.com/2008/06/26/business/26gene.html?_r=1

There was a big deal about it last year but I have not heard much since.

-Darren Marin
Family Tree DNA

These sorts of things wax and wane but never go away. The next time it comes up, make a personal phone call to the district office of each of your elected representatives. It is counted the equivalent of 50 separate letters. Say your own version. It carries more credibility. But say simply DNA testing is good. It is about family connections. It is important enough to you to change your vote and maybe important enough to change your contributions. Do not ever count on this to go away altogether. It won't. But all politics is local, and if enough local political figures hear it is important enough for their constituents to call their office, those calls will have an effect. I may not know the ins and outs of the technical side of DNA, but I do understand the process about which we are talking. Personal assertiveness without animosity counts for a lot.

[lc0]

foolish...?

>> I think banning DNA testing would be foolish.

This isn't about DNA tests for genealogy/ancestry purposes but for pseudo-medical selv-diagnoses (these are always very carefully formulated for legal reasons) and _that's_ a whole different & worrisome matter. When I read some of the advertising on the relevant websites (eg 23&me) I got sort of nauseous. I guess with enough fineprint one cannot stop this anyway, but serious warnings are needed imho.

[spruithean]

>> I think banning DNA testing would be foolish.

This isn't about DNA tests for genealogy/ancestry purposes but for pseudo-medical selv-diagnoses (these are always very carefully formulated for legal reasons) and _that's_ a whole different & worrisome matter. When I read some of the advertising on the relevant websites (eg 23&me) I got sort of nauseous. I guess with enough fineprint one cannot stop this anyway, but serious warnings are needed imho.

So if with these tests people discover that they have some sort of disease or something.... hmm

But yes they should still warn people before they go through with it.

[Ann Turner]

I remember seeing something in the news recently that would effectively ban me from purchasing a kit from 23andMe. I cannot find any further info and am trying to verify this, does anyone know more about this?

Cheers,

Zaru

Yes, that's correct. If you pretend to order a kit, this is the message that pops up:

23andMe is currently unable to process saliva samples collected in or mailed from the state of New York. The New York Department of Health considers our Personal Genome Service a test requiring a lab license and direct physician involvement.

If you or the recipient of the Spit Kit intend to collect your sample and mail it from outside the state of New York, please select the "Ship to New York" button below. Upon receipt of your Spit Kit, you or the Spit Kit recipient will be required to affirm under penalty of law that the sample for the Spit Kit has not been collected in or mailed from the state of New York.

[Deirwha]

Warnings

So if with these tests people discover that they have some sort of disease or something.... hmm

But yes they should still warn people before they go through with it.

Perhaps. I don't know about 23andMe but I recall FT DNA providing what I would consider an adequate "informed consent" at the time of my FGS.

I wonder if the same were required of legislation ... some sort of disclaimer like ... "This legislation's stated objective is to protect people from unnecessary exposure of private information of medical significance but its operative words require you to test only with labs approved by the state, a condition of which approval is the labs retain an MD." No doubt all legislation is motivated by only a sincere desire to protect our interests rather than lobbyists protecting and promoting the interests of their clients. However I do wonder about the rational relationship between the "selling point" goal and the method actually enacted.

[girlperson1]

Yes, that's correct. If you pretend to order a kit, this is the message that pops up:

23andMe is currently unable to process saliva samples collected in or mailed from the state of New York. The New York Department of Health considers our Personal Genome Service a test requiring a lab license and direct physician involvement.

If you or the recipient of the Spit Kit intend to collect your sample and mail it from outside the state of New York, please select the "Ship to New York" button below. Upon receipt of your Spit Kit, you or the Spit Kit recipient will be required to affirm under penalty of law that the sample for the Spit Kit has not been collected in or mailed from the state of New York.

Drive across the border to New Jersey, spit and mail.

[PDHOTLEN]

The underground economy is alive and well! The more laws there are against this or that, the more people will do their things underground.

[chuckk]

You may find the below link pertinent to this topic

CDC Guidelines For Genetic Testing

http://www.cdc.gov/mmwr/mmwr_rr.html

Chuckk